Virtual workshop focus
Creating a scalable data eco-system often starts with defining an architecture capable to integrate multiple data from different systems and contexts. In the healthcare domain, the Internet of Things has often been the starting point for defining a reference architecture and most of the existing open-source platforms have been developed in this context.
The objectives set up by the European Health Data Space request to rethink the reference architecture to focus on data use and reuse. But all this can only exist if citizens can concretely engage in data sharing and if data is of sufficient quality. To cope with the complexity that this entails, data intermediaries are emerging as new actors to create the conditions of ethical and efficient data sharing.
This webinar will help you to understand who these new actors are and explore the role they are expected to play through concrete examples.
Angelo Marguglio - Ingegneria Informatica SpA - Italy
Will set the scene on a ‘reference architecture’ for the Internet of Things and data sharing projects. He will showcase the findings of the IDSA report on large-scale pilots on supporting abstract modelling of reference architectures, and will explore the linking of the EHDS and Gaia-X with data intermediaries.
Luc Nicolas – eHealth Project Officer, EHTEL
Describes the different types of data intermediaries and presents their roles to support citizens handling of data to fulfil the gaps of trust, consent, interoperability, based on the work developed by the Centre for Digital Ethics and Innovation (UK).
A panel of experts will debate about the roles of data intermediaries to facilitate a citizen-centric health data sharing.
Questions for the discussion:
- Behind the platforms, do we need to have intermediaries mobilized?
- Which roles can they play specifically in the health domain?
- How should data intermediaries be selected and controlled?
This workshop is supported by the InteropEHRate and Open DEI projects.
Save the date!
8 November 2021, 15:00 - 16:00 CET