Completing a quick survey can help with greater understanding of patients’ access to their health data. Take action now.
With increasing focus on the importance of electronic health records, cross-border healthcare, and the European Health Data Space, how much access patients get to their health data is clearly a vital topic.
EHTEL member, the Norwegian Centre for eHealth Research (NSE), is part of a European study on patients’ access to their own digital health record. The questionnaire survey is to be conducted across Europe and beyond. The results will be presented at Medical Informatics Europe (MIE) in Nice, France in May 2022. The conference focus is on “Challenges of trustable AI and added value on health”.
Clearly, researchers, policymakers, and the public in Europe and beyond need to be able to learn more about how patient access to medical health records is implemented in their own countries.
As Chair of European Federation of Medical Informatics (EFMI) Citizen and Health Data Working Group, NSE’s colleague, Maria Hägglund of Sweden’s Uppsala University, makes a plea for you to complete a short survey. Read her letter, and answer EFMI’s working group survey.
Patients’ access to their health information in general, and electronic health records in particular, is of great importance. In the European Federation of Medical Informatics (EFMI) Citizen and Health Data Working Group, we are interested in exploring the current implementation of these types of eHealth services across Europe (and internationally). This is our first step to investigate the current state of implementation, and we will summarize and publish the results in different venues.
Patients’ access to their health information in general, and electronic health records in particular, is of great importance. In the European Federation of Medical Informatics (EFMI) Citizen and Health Data Working Group, we are interested in exploring the current implementation of these types of eHealth services across Europe (and internationally). This is our first step to investigate the current state of implementation, and we will summarize and publish the results in different venues.
The survey is completely anonymous. If you are interested in contributing to further research on this topic, at the end of the survey you have the option to leave your contact details following a separate link.
Access the survey here.
On behalf of the EFMI Citizen and Health Data Working Group
Maria Hägglund, Chair
